Cystic fibrosis (CF) is a rare and life threatening genetic disorder that affects the lungs, pancreas, and other organs. CF causes mucus to become thick and sticky. As mucus builds up, it can cause blockages, damage, or infections in affected organs. Every CF patient experiences symptoms and severity of those symptoms, differently. 

A little bit about our story:

Georgia was diagnosed just after birth with Cystic Fibrosis. She has been taking Creon since she was 2 weeks old. This medication is mixed with applesauce and salt, then taken before every meal. She is pancreatic insufficient, which means her pancreas doesn't release enough digestive enzymes to break down food and Creon helps with combat this. 

At 14 months old, in addition to Creon, Georgia began taking a new medication twice a day, called Orkambi. This new medication is a CFTR modulator, helping make the mucus in the lungs thinner and less sticky, which helps improve lung function.

Georgia doesn’t know any differently, but I’m constantly in awe and proud of how well she handles everything she is put through. 

Thank you for reading our story and supporting us through this disease.