In support of Georgia: Walk with our team to Cure Cystic Fibrosis

Team Georgia
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Team Georgia

A little bit about our CF story:

Georgia was diagnosed just after birth with Cystic Fibrosis. She has been taking Creon since she was 2 weeks old. This medication is mixed with applesauce and salt, then taken before every meal. She is pancreatic insufficient, which means her pancreas doesn't release enough digestive enzymes to break down food and Creon helps with combat this. 

At 14 months old, in addition to Creon, Georgia began taking a new medication twice a day, called Orkambi. This new medication is a CFTR modulator, helping make the mucus in the lungs thinner and less sticky, which helps improve lung function.

Georgia doesn’t know any differently, but I’m constantly in awe and proud of how well she handles everything she is put through. 

Thank you for reading our story and supporting us through this disease. 



We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.

While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.

Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.