Walk with our team to Cure Cystic Fibrosis

The Mutineers

Fundraising for Morgantown Great Strides

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The Mutineers

I'm Rebecca, and I lead our Great Strides team, the Mutineers.
My husband, Kody, lives with cystic fibrosis. Together, we're raising our 18-month-old son, James.

When Kody and I met in 2016, his daily routine was intense: four different nebulized medications twice a day (including antibiotics), chest percussion therapy with a vest twice a day, and sinus rinses often combined with steroids and antibiotics. Doctor visits were filled with anxiety - especially waiting on those all-important lung function numbers. He faced repeated sinus surgeries for chronic sinus disease and was hospitalized for IV antibiotics more than once.

While many therapies helped slow the disease's progression, cystic fibrosis remained a life-shortening, progressive illness.

But everything changed in late 2019 when a new CFTR modulator therapy became available. Today, Kody's lung function is stable. He's gained weight. He no longer needs daily nebulized medications and only takes antibiotics when he's sick. Kody works as an actuary, and when he's not crunching numbers, he enjoys working out and chasing after our very busy toddler.

We've seen firsthand how research and medical breakthroughs can transform lives. That's why we're asking for your support. Your donation helps fund the research that makes these life-changing treatments possible - and gives families like ours more tomorrows.


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$250
raised of $400 goal
 

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6 Participants

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Project CF Spouse Family / Team Project CF Spouse

$13,074 raised $10,000 goal

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.