Hi Everyone!

For those of you who don't know us, we are Bob and Rochelle Rose. We have two beautiful baby girls, Blake who is 2.5 years old and Nova who is 3 months old!

Blake was diagnosed with cystic fibrosis after her newborn screen came back abnormal and showed two mutations. We immediately began working with the Mountain State CF Care Center where we learned that cystic fibrosis is NOT the disease that it once was. They told us that Blake's genetic mutations allowed her to be eligible for "a miracle drug" that would essentially, with some behind the scenes work, allow her to have a healthy mostly "normal" life. As our heads spun, we learned about enzymes and why they were important. We learned about breathing treatments, airway clearance and long term goals for Blake. We learned what our new life was going to consist of. Soon, those strangers that gave us the worst news of our lives, became like family.

We are 2.5 years into our CF journey. In July, Blake started her miracle drug. We are less than a year into our Trikafta journey and we have already seen huge improvements in Blake's health, specifically with her weight gain.

Trikafta is a modulator that acts as the closest thing to a cure for cystic fibrosis but not everyone can benefit from it due to their specific mutations. In January, the CFF released its five year plan, a cure being its main priority. To do this, the CFF is investing millions of dollars into developing transformative genetic therapy approaches for the lungs for every person with CF. Their goal is to advance innovative genetic pulmonary therapies, optimize delivery technologies, and clear pathways for clinical trials for highly effective treatments.

Please consider joining our team and donating to our cause. Every donation helps find a cure for cystic fibrosis... a cure that we pray our daughter sees in her lifetime.