GREAT STRIDES for Cystic Fibrosis is BACK – Sunday, May 4^th at New Canaan High School!
 
We are thrilled to be back for 2025!  We can’t wait to see everyone – and hope that you can join us!  Can you believe we’re in College!  That’s due in no small part to this amazing team! 
 
So here are the details for this year’s walk:
 
Date:                    Sunday, May 4, 2025
 
Location:             New Canaan High School
                              11 Farm Road, New Canaan, CT 06840
 
Time:                    Check-in 9:00 am / Walk begins 10:00am
 
Here are your three (3) talking points for CF this year….
 
1)We’re not done, there are still 10% of the CF population that CFTR modulators (Kalydeco and Trikafata) do NOT work for — so we need to keep pushing forward to find this next level…
 
2)We need FEDERAL Funding for a MEDICAL RESEARCH – we’ve been asking for additional funds for a new generation of antibiotics (the PASTEUR Act) – but given what’s happened in DC – we need to explain to Congress (up and down both sides of the aisle) – that Federal funding of the NIH and Research – is critical to our futures – it’s not a luxury item! It’s a necessity!
 
3)TRIKAFTA is AWESOME!  It’s having a dramatic impact throughout the CF population – with FEV scores, weight gain, and overall improvement in endurance for most CF patients.  For Aine – it means consistent FEV’s in the 130 range and improved endurance.  She continues to be incredibly active – playing club ice hockey and running as a freshman at UCONN…
 
We can’t wait to see everyone – so click on the link below to join Aine’s Angels ’25…and put Sunday, May 4^th on your calendars….
 
Aine's Angels 2025
  
See you soon!
  
Jim, Tricia, Fiona & Aine