My Great Strides Story
Nathan DeBraal
Fundraising for Rochester Great Strides 2026
Nathan DeBraal
There is currently no cure for Cystic Fibrosis. There are alternatives, such as various treatments and medications that improve the quality of life of people with CF, but there is no defined cure.
Cystic Fibrosis is a genetic disorder that causes thick, sticky mucus to form and build in the lungs and pancreas without proper treatment. This disorder leads to bacteria and viruses getting trapped in the mucus in the lungs, causing people with CF to stay sick much longer than others. Along with this issue, the building of mucus leads to pancreatic insufficiency, causing people to need to take many enzymes every time they eat.
Currently, the only known ways to combat Cystic Fibrosis are multiple rounds of treatments daily, such as airway clearance and nebulizers; medications, like modulators for CF such as Kalydeco and Trikafta; and tune-ups. Tune-ups are typically two-week hospital visits consisting of up to 5 hours of treatment and IV antibiotics in order to get mucus and illnesses out of the body. People with CF will typically spend at least a month in the hospital each year.
So, with all that, why donate?
By donating, you will help find a cure for everyone with CF, giving them time back in their day, months back in their year, and years back in their life.
Cystic Fibrosis is a genetic disorder that causes thick, sticky mucus to form and build in the lungs and pancreas without proper treatment. This disorder leads to bacteria and viruses getting trapped in the mucus in the lungs, causing people with CF to stay sick much longer than others. Along with this issue, the building of mucus leads to pancreatic insufficiency, causing people to need to take many enzymes every time they eat.
Currently, the only known ways to combat Cystic Fibrosis are multiple rounds of treatments daily, such as airway clearance and nebulizers; medications, like modulators for CF such as Kalydeco and Trikafta; and tune-ups. Tune-ups are typically two-week hospital visits consisting of up to 5 hours of treatment and IV antibiotics in order to get mucus and illnesses out of the body. People with CF will typically spend at least a month in the hospital each year.
So, with all that, why donate?
By donating, you will help find a cure for everyone with CF, giving them time back in their day, months back in their year, and years back in their life.
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