Irma Lee
We've known Bowie since he was a bun in the oven! He was diagnosed with Cystic Fibrosis at two weeks old, he is now a thriving 5th grader who enjoys diving, surfing and skiing just to name a few of his favorite. Few years back his daily regimen required over 30 pills, 1-2 hours of chest therapy, 4 nebulizer treatments, inhalers galore and 2 nasal lavages to keep him going. In Aug. 2021 Bowie became eligible to start on Trikafta, an FDA approved prescription drug for CF for patients 6 years and older. Around May 2022 Bowie's pulmonary function was within normal range and his pancreas started working again! This means around 30 LESS pills a day for Bowie and him and his family don't have to worry about him facing the long term effect of pancreatic disease, such as CF related diabetes, liver and bowel disease.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m joining the effort to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CFF funded the research that helped discover the many therapies and medications including Trikafta that keep Bowie healthy!
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m joining the effort to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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