Bowie is now 10 and thanks to research funded by events like this, he is healthy, happy, and thriving.

But, just two weeks after our son Bowie was born, we received a call that changed everything: his newborn screening came back positive for cystic fibrosis. Amid the sleepless nights and newborn chaos, we were completely blindsided. I had pictured those early days with a baby as pure joy—and they were joyful—but that call filled us with fear and uncertainty. For a brief moment, it felt like the future we had imagined for our sweet baby boy had vanished.

Thankfully, we were quickly connected with the incredible team at the CF Clinic at Rady Children’s Hospital and the Cystic Fibrosis Foundation. Over time, we began to understand that while this diagnosis would absolutely be life-changing, it didn’t have to be life-ending.

Now, ten years later, life is full. There are things we must do every day to keep Bowie healthy, but everyone carries something—and we carry this with hope. Thanks to groundbreaking research and the unwavering support of friends, family, and communities like yours, the life expectancy for people with CF has dramatically improved. Still, there is no cure, and far too many lives are shortened by this disease.
 

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  Bowie is one of approximately 30,000 Americans living with cystic fibrosis. They are sons and daughters, friends and co-workers—fighting every day just to breathe. We are fighting for them. We are fighting for Bowie.

Bowie’s Brigade is committed to giving him the future we always dreamed he would have—and helping all those with CF live longer, fuller lives.