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My Great Strides Story

Roni Boyles

Fundraising for Boston Great Strides 2026

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Roni Boyles

My beloved friend, Brian Long, defied the odds by surviving 52 years with CF. Though doctors never expected him to live past his teens, Brian embraced life with passion, grace, and deep gratitude. He was the embodiment of resilience, a beacon of hope for others fighting this relentless illness.

As a prominent advocate, he helped raise hundreds of thousands of dollars for research and support, leaving an indelible mark on the CF community.
I'm walking in his honor to continue his mission of funding research to end this horrific disease. 

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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$550
raised of $500 goal
 

Achievements

Member of

Team BLongStrong

$2,985
$5,000

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.