Cystic Fibrosis entered my life when our beautiful daughter, Julia, was born in 2016. We were terrified, and a cursory google search gave us very little hope. However, thanks to the tireless efforts of the CFF, we received a very strong message of hope from our CF care team at Childrens. 

Adding to CF’s impact on my life, I myself was diagnosed with a rare variant after a couple scary bouts of acute pancreatitis. Without the advancements made through research funded by CFF, this would have gone undiagnosed and I would live a very different and limited life. 

Julia and I take great medication that keeps the worst of the symptoms away, but there are many people living with CF who’s variant does not have a sufficient treatment path.

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