My Sissy.  She was my big sister—my only sibling- and cystic fibrosis was part of our story from the very beginning. She was my protector, confidante, and my first and very best friend. Living with CF was more than challenging, but she did it very much on her own terms. At 12 doctors told her she’d likely not live to see her 16th birthday. She lived her whole life under that shadow. They also told her she likely never have children. She responded by having four, because defying expectations was kind of her thing. She went on to live to 64, powered by evolving therapies, resilience, stubborn courage, and a sense of humor that carried her through it all. She never stopped fighting, but she also never stopped living. She always called CF a life-limiting disease, not a terminal illness — and she proved that every single day. I walk in her memory to honor that spirit, support those living with CF, and help move us closer to a cure.
  CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.