On April 26, 2022, our world was turned upside down when a sweat test confirmed that our son, Louis, has cystic fibrosis. He was barely a week old, and we had no idea what his future would hold. We knew very little about CF—except what we had learned through our family’s friendship with the Tomassetti family, whose daughter, Liv, also has CF.
 

More than 20 years ago, Liv’s journey began with a five-hour surgery, when doctors discovered she had cystic fibrosis. Since then, she has faced countless hospitalizations and ongoing complications affecting her lungs and pancreas.
 

Louis and Liv’s similarities don’t stop at their diagnosis. They are also part of the 10% of people with CF who have rare forms of the disease that do not respond to CFTR modulators. For Louis, modulators will never be an option because of how his CFTR protein is produced—meaning his best hope lies in the development of genetic therapies.
 

That’s why this year we’re participating in Great Strides and fundraising to support the Cystic Fibrosis Foundation’s mission and the promising genetic therapies currently in clinical trials.
 

There is still no cure for cystic fibrosis, and too many people with CF die young. We’re walking because we refuse to accept that as Louis or Liv’s story.
 

Cystic fibrosis is a genetic, life-shortening disease that impacts the lungs, pancreas, and other vital organs. For families like ours, it means daily treatments, medications, and constant vigilance to keep infections away. It means watching your child work hard to do something as simple as breathe, and knowing that even a common cold can become something much more serious.
 

Every person with CF is on a unique journey. Liv has fought through years of hospitalizations and complications, and Louis is just beginning his. We are hopeful because research is moving faster than ever—but for those who can’t benefit from modulators, time matters. We need continued progress, continued investment, and a cure—so that Louis, Liv, and everyone living with CF has the chance to live a long, healthy life.
 

Will you help us end cystic fibrosis?

By donating toward our fundraising goal, you are helping advance the research and science needed to drive our shared dream forward: a cure for everyone with CF.
 

We’re walking for Louis. We’re walking for Liv. And we’re walking for every family still waiting for hope—until the day CF is no longer part of their story.