Edit in profile section

My Great Strides Story

Skyy Coniglio
Donate

Skyy Coniglio

It was through Reagan’s newborn screening that we first learned she was born with Cystic Fibrosis. At the time, Levi and I had no understanding of what CF was or how we were going to navigate this new reality. Neither of our families had any experience with this diagnosis, and it left us feeling lost and uncertain. But in the midst of the overwhelming news, we were quickly introduced to the incredible CF Foundation and the compassionate CF team at Phoenix Children's Hospital. They became our guiding lights, providing Reagan with the medications she needed to alleviate her hunger pains, uncontrolled stools, vitamin deficiencies, and helping to start therapies that would keep her lungs clear.

Levi and I learned how to perform chest physical therapy on an infant, gently tapping Reagan’s chest with a rubber piece, a technique that’s become part of our daily routine. While most babies don’t have their first taste of food until around six months old, Reagan was swallowing applesauce and enzymes like a pro by just twelve days old.

I’ll never forget the day we received the call with her diagnosis. We were flooded with questions—how would her life unfold? Should we consider relocating closer to the hospital? But thanks to the CF Foundation, doctors, and the remarkable partnerships they’ve built, the answers to those questions became clearer over time.

Reagan's life is beautiful. We live where our family feels happiest and most at home. She has the opportunity to live a life that’s as normal as possible, with only a few extra steps along the way.

Because of the support of the CF Foundation, Reagan has access to all the medical care she needs—no barriers. She’s part of a community that understands her, a community that’s filled with hope, and no matter what, it’s always there for her. She’s able to run and play with her sisters without limits, she gets to complain about doing her therapies (like any kid would), and she has the tools to thrive—thanks to the advancements in research, medicine, and therapies that give us the chance to live this full, joyful life together.

Most importantly, the CF Foundation shares a mission that we hold in our hearts every single day—a cure. We are endlessly grateful for all the support, love, and hope you all provide for families like ours, facing Cystic Fibrosis with courage and faith.

Thank you for supporting the CF Foundation, a lifeline for Reagan and so many others. Your generosity truly makes a world of difference.



There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

Comments

$0
raised of $500 goal
 

Achievements

Leader

Team #Strong4Reagan

$0
$4,000

Recent Donations

Be the first to donate!

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.