Walk with our team to Cure Cystic Fibrosis

#Strong4Reagan
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#Strong4Reagan

It was through Reagan’s newborn screening that we first learned she was born with Cystic Fibrosis. At the time, Levi and I had no understanding of what CF was or how we were going to navigate this new reality. Neither of our families had any experience with this diagnosis, and it left us feeling lost and uncertain. But in the midst of the overwhelming news, we were quickly introduced to the incredible CF Foundation and the compassionate CF team at Phoenix Children's Hospital. They became our guiding lights, providing Reagan with the medications she needed to alleviate her hunger pains, uncontrolled stools, vitamin deficiencies, and helping to start therapies that would keep her lungs clear.

Levi and I learned how to perform chest physical therapy on an infant, gently tapping Reagan’s chest with a rubber piece, a technique that’s become part of our daily routine. While most babies don’t have their first taste of food until around six months old, Reagan was swallowing applesauce and enzymes like a pro by just twelve days old.

I’ll never forget the day we received the call with her diagnosis. We were flooded with questions—how would her life unfold? Should we consider relocating closer to the hospital? But thanks to the CF Foundation, doctors, and the remarkable partnerships they’ve built, the answers to those questions became clearer over time.

Reagan's life is beautiful. We live where our family feels happiest and most at home. She has the opportunity to live a life that’s as normal as possible, with only a few extra steps along the way.

Because of the support of the CF Foundation, Reagan has access to all the medical care she needs—no barriers. She’s part of a community that understands her, a community that’s filled with hope, and no matter what, it’s always there for her. She’s able to run and play with her sisters without limits, she gets to complain about doing her therapies (like any kid would), and she has the tools to thrive—thanks to the advancements in research, medicine, and therapies that give us the chance to live this full, joyful life together.

Most importantly, the CF Foundation shares a mission that we hold in our hearts every single day—a cure. We are endlessly grateful for all the support, love, and hope you all provide for families like ours, facing Cystic Fibrosis with courage and faith.

Thank you for supporting the CF Foundation, a lifeline for Reagan and so many others. Your generosity truly makes a world of difference.

We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.

While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.

Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.