My Xtreme Hike Story
Jason Bing
Fundraising for North Carolina Spring Xtreme Hike
Jason Bing
Welcome!
There is currently no cure for cystic fibrosis and too many people with CF live a life too short. As the father of a child living with cystic fibrosis, I’m hiking to help change that reality for my son, Edward.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. For Edward, he started 2 months premature with a nine week stay in the hospital and serious intensive care, including surgery on the second day of his life.
His every day is filled with hours of morning and evening treatments, medicines and extra food to support his body. Despite the time and energy it takes, he does it with patience, resilience, and a wonderful sense of humor.
While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure for Edward and so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for Edward, my son, and everyone living with CF.
There is currently no cure for cystic fibrosis and too many people with CF live a life too short. As the father of a child living with cystic fibrosis, I’m hiking to help change that reality for my son, Edward.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. For Edward, he started 2 months premature with a nine week stay in the hospital and serious intensive care, including surgery on the second day of his life.
His every day is filled with hours of morning and evening treatments, medicines and extra food to support his body. Despite the time and energy it takes, he does it with patience, resilience, and a wonderful sense of humor.
While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure for Edward and so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for Edward, my son, and everyone living with CF.
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