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My Xtreme Hike Story

David Duesterberg

Fundraising for Steamboat Xtreme Hike

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David Duesterberg

33 years ago, my wife Margie and I learned that our oldest daughter had Cystic Fibrosis, which we knew very little about, other than she was suffering from the effects and was unlikely to survive past 30, that she would be coughing constantly and spend many weeks each year in the hospital.

Over the last five years, we have watched Liv experience a miracle. Through decades of work funded by the Cystic Fibrosis Foundation, the new medication Trikafta has led to unprecedented improvement in all aspects of her health. After all these years caring for her, then trying to help her manage her own care, it’s hard to describe how significantly this therapy has changed her life.

Now, she is leading an active life, managing a challenging professional career and spending time in the mountains whenever possible.

Olivia still has the burden of daily treatments, and there are many more affected by CF who are not helped by this medication. Olivia and thousands of other people like her need your help to continue research until a cure is found for all.

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m hiking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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$250
raised of $2,500 goal
 

Achievements

Leader

Team Liv’s Michiganders

$250
$10,000

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.