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My Xtreme Hike Story

Maddie Duesterberg

Fundraising for Steamboat Xtreme Hike

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Maddie Duesterberg

Cystic Fibrosis (CF) is a life-shortening, genetic disease that devastates the lungs, pancreas, and other vital organs. Liv, my sister, has lived with CF for 32 years. Until recently, I never thought she would live to see 30.   

 

Liv used to spend every day of her life coughing constantly and struggling to breathe. As a child, I remember watching her endure hospital visits for weeks at a time, each year, due to complications of her CF. 

 

5 years ago, Liv experienced a miracle. Through decades of work, funded by the Cystic Fibrosis Foundation, the new medication Trikafta has led to unprecedented improvement in all aspects of her health. Trikfta has enabled her to live a life that she didn’t think possible before. She’s able to juggle a challenging professional career with a social life, and she spends time in the mountains whenever possible. 

 

Even though Liv’s quality of life has vastly improved with Trikafta, she still carries the burden of daily treatments, and there are many more affected by CF who are not helped by this medication. Liv and thousands of others living with CF need your help to continue this life-giving research until a cure is found for all. 

 

Currently, there is no cure, and too many CFers die young. I’m hiking to help change that reality. 

 

Will you help us end Cystic Fibrosis?

 

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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$1,062.80
raised of $5,000 goal
 

Achievements

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Team Liv’s Michiganders

$11,697.80
$15,000

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.