Brave Brothers Great Strides Story
Corine Nye
Fundraising for Utah Great Strides 2026
Corine Nye
Brave Brothers Story
Lincoln was diagnosed with Cystic Fibrosis (CF) when he was 4 weeks old. Cystic Fibrosis is a progressive genetic disorder where they are born with a faulty protein that affects the body's cells, tissues, and the glands. The cells don’t work properly and causes the body to create a thick sticky mucus that affects the lungs, pancreas and several organs of the body. When Lincoln was a baby, we knew something wasn’t quite right when he didn’t gain any weight and was in pain after he would eat. Along with this he couldn’t breathe well on his own and used a high flow machine to help him with this. When Lincoln was diagnosed with CF we were told devastating news that he would have a shortened life span and his life would be very challenging.
Calvin was diagnosed in the womb through a prenatal amniocentesis. When Calvin was born he had a bowel obstruction due to his thick, sticky mucous that caused him to not be able to eat normally for the first week of life. He was in NICU for 13 days and underwent several painful procedures while receiving nutrients through a central PICC line.
When Lincoln and Calvin catch a virus or any bacteria, it can cause long-term damage to their lungs making it harder to breath. To keep them healthy, on a typical day each of them does two treatments (a vibrating lung vest with inhaled medicine). When they are sick their treatment increases to 3-4 treatments daily which takes time away from school and other activities. Other daily necessities include taking several medications to maintain proper growth and function as well as sanitizing and persistent germ control. They take enzyme pills with every meal in order for their bodies to digest fats and proteins and. Lincoln and Calvin fight every day to stay healthy and through it all their brother Jackson is their biggest cheerleader and support. He stays with them during treatment and encourages them daily. These boys are truly our BRAVE heroes.
Your support creates impact
Through the challenges, we have so much hope for Lincoln and Calvin’s lives. Families and friends before us have fought to find a cure by fundraising and promoting research in order to find a cure for Cystic Fibrosis. Lincoln and Calvin have benefited tremendously from new medications that have come out and have increased their quality and longevity of life. As a 7 year-old and 2 year old, each are living a happy and vibrant life. However, this disease is progressive and worsens as they grow. We continue to fight in finding a cure for this disease and hope you can support us in this! Consider being a part of this quest by donating to the CF foundation. We are so thankful for your love and support and consideration in helping find a cure for our Brave Brothers.
**The Cystic Fibrosis Foundation is at the helm of new age medication technology involving gene-editing therapy. This type of therapy is groundbreaking in the sense that it aids in teaching the bodies cells how to work properly, rather than past medicine that instead slows the damaging process. This type of research is making it possible to not only help with Cystic Fibrosis but also with many other rare diseases that many deal with. You can be apart of this happening from donating.
Lincoln was diagnosed with Cystic Fibrosis (CF) when he was 4 weeks old. Cystic Fibrosis is a progressive genetic disorder where they are born with a faulty protein that affects the body's cells, tissues, and the glands. The cells don’t work properly and causes the body to create a thick sticky mucus that affects the lungs, pancreas and several organs of the body. When Lincoln was a baby, we knew something wasn’t quite right when he didn’t gain any weight and was in pain after he would eat. Along with this he couldn’t breathe well on his own and used a high flow machine to help him with this. When Lincoln was diagnosed with CF we were told devastating news that he would have a shortened life span and his life would be very challenging.
Calvin was diagnosed in the womb through a prenatal amniocentesis. When Calvin was born he had a bowel obstruction due to his thick, sticky mucous that caused him to not be able to eat normally for the first week of life. He was in NICU for 13 days and underwent several painful procedures while receiving nutrients through a central PICC line.
When Lincoln and Calvin catch a virus or any bacteria, it can cause long-term damage to their lungs making it harder to breath. To keep them healthy, on a typical day each of them does two treatments (a vibrating lung vest with inhaled medicine). When they are sick their treatment increases to 3-4 treatments daily which takes time away from school and other activities. Other daily necessities include taking several medications to maintain proper growth and function as well as sanitizing and persistent germ control. They take enzyme pills with every meal in order for their bodies to digest fats and proteins and. Lincoln and Calvin fight every day to stay healthy and through it all their brother Jackson is their biggest cheerleader and support. He stays with them during treatment and encourages them daily. These boys are truly our BRAVE heroes.
Your support creates impact
Through the challenges, we have so much hope for Lincoln and Calvin’s lives. Families and friends before us have fought to find a cure by fundraising and promoting research in order to find a cure for Cystic Fibrosis. Lincoln and Calvin have benefited tremendously from new medications that have come out and have increased their quality and longevity of life. As a 7 year-old and 2 year old, each are living a happy and vibrant life. However, this disease is progressive and worsens as they grow. We continue to fight in finding a cure for this disease and hope you can support us in this! Consider being a part of this quest by donating to the CF foundation. We are so thankful for your love and support and consideration in helping find a cure for our Brave Brothers.
**The Cystic Fibrosis Foundation is at the helm of new age medication technology involving gene-editing therapy. This type of therapy is groundbreaking in the sense that it aids in teaching the bodies cells how to work properly, rather than past medicine that instead slows the damaging process. This type of research is making it possible to not only help with Cystic Fibrosis but also with many other rare diseases that many deal with. You can be apart of this happening from donating.
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