COURAGEOUS HOPE FOR EVAN

My name is Stacy. I’m a mom to two boys—Jaxson and Evan. And like a lot of families here, we didn’t expect our story to include something rare.
 

But it does.

When Evan was just six weeks old, we got the call. He had Cystic Fibrosis. At the time, we were told:

• It was progressive
• He would get sicker over time
• Life expectancy was around 36 years
• Daily treatment would take hours
• He would take 20+ pills a day

It was overwhelming. It was heartbreaking. It felt like our future had just been rewritten. 

In that first meeting, our doctor said something we’ve never forgotten:

“For the first time in CF history… there is hope.”

Not guaranteed answers. Not a cure. But momentum.

That changed everything.

In 2021, everything changed. Evan became eligible for a medication called Trikafta. For the first time, a treatment existed that addressed the root cause of cystic fibrosis.

CF hasn’t disappeared. But it no longer controls every moment of his life.

Here’s the part people don’t always see:

• These medications can cost $300,000+ per year
• Not everyone has access
• Not everyone responds to current treatments
• There is still no cure

So the mission isn’t done. Not even close. Everything we benefit from today exists because of people who acted before results were guaranteed:
 

• Parents who refused to accept “no options”
• Researchers who worked without certainty
• Families who fundraised when there was no roadmap

That’s how progress in cystic fibrosis has always happened. And it’s how the next breakthrough will happen too.

I’m starting this with the first $65.

Now I’m asking for 100 people to join me.

Why $65?  Because in the CF community, “65 Roses” is a well-known nickname for Cystic Fibrosis—a phrase young children used when they
couldn’t pronounce the disease.

We’ve seen firsthand what progress can do. Now we’re helping push it further.

Your support helps:
 

• Fund the next generation of treatments
• Expand access to life-changing therapies
• Move us closer to a cure

Most importantly—it helps kids like Evan keep living full, normal lives.

We’re choosing courageous hope—and we’d love for you to be part of it.