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Lindy's Story

Mckay Tenney

Fundraising for Utah CF Cycle for Life 2026

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Mckay Tenney

Lindy was diagnosed with Cystic Fibrosis (CF) when she was 3 days old. This was a big blessing, as many newborns are not diagnosed--and therefore do not start treatments--until they are a few weeks old. 

CF is a genetic, non-infectious disease that affects the body in multiple ways, but stems from a strand deletion in the genetic code of our DNA; the gene that regulates the movement of chloride and sodium ions across cell membranes. With this disorder, the salt and water transport across cells is severely disrupted and causes dehydration, thick and sticky mucus in the lungs, which obstruct airways and creates an environment for viruses to thrive and ultimately progressive loss of lung function altogether if not treated. 

The thick mucus obstructs the pancreatic ducts, blocking digestive enzymes to the small intestine, resulting in poor digestion of crucial fats and proteins, malabsorption of nutrients and fat-soluble vitamins, leading to difficulty maintaining weight and overall growth. 

There is currently no cure for CF and many children and adults suffer from its affects. 

Lindy's absolute favorite color is Yellow, which if very fitting because she brightens our world so much! She is a trooper, and combats the effects of CF every day. We are hopeful that someday she will be cured of her hardship and be able to live life without all the breathing exercises, machines, pharmaceuticals, medicines, and other things she doesn't get to participate in.

The CFF foundation has made real progress and with the money donated to the organization, numerous advancements have been made in finding a cure and have been directly responsible to increase life expectancy from 20 years to over 60 just in the last 10-20 years. Your donation is extremely welcome and appreciated and it will make a difference. 

Thank you so much :)

 

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$100
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$100
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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.