Evan's Team
This is our 26th year of Fundraising for Cystic Fibrosis(CF). With your help and the help of so many, we’ve made tremendous progress over the past 25 years. We’ve raised $2.7M to fund research, we’ve seen the launch of life-changing drugs from Vertex and other pharma companies, and we’ve seen the life expectancy of those with Cystic Fibrosis more than double. Truly Amazing.
Evan’s Team raises money for the many individuals and families who battle Cystic Fibrosis every day. For those of you who are new to CF, it is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. It is an orphan disease that affects 30,000 people in the US and 70,000 globally. Dramatic drug advancements have happened over just the past few years and changed the progression of the disease for many. But today, for 10% of those with CF, there is still no drug to treat their underlying genetic mutation. We know intimately how challenging it can be.
In June, we’re excited to again be doing the Cystic Fibrosis Xtreme Hike to raise money for CF research. 26 miles in one day. If you are able to donate, we would be very grateful.
Evan’s Team raises money for the many individuals and families who battle Cystic Fibrosis every day. For those of you who are new to CF, it is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. It is an orphan disease that affects 30,000 people in the US and 70,000 globally. Dramatic drug advancements have happened over just the past few years and changed the progression of the disease for many. But today, for 10% of those with CF, there is still no drug to treat their underlying genetic mutation. We know intimately how challenging it can be.
In June, we’re excited to again be doing the Cystic Fibrosis Xtreme Hike to raise money for CF research. 26 miles in one day. If you are able to donate, we would be very grateful.
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