Dear Friends and Family, 

As many of you know, our daughter Mamie has Cystic Fibrosis, a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. Mae is a typical 15 year old- she loves hanging with her buddies, terrifying us with tricks on the slopes, and staying busy with  school and sports. But her body is working hard, fighting every day to slow damage to fragile lung tissue she needs to breathe. 

Over the past year Mae has spent almost 400 hours doing chest therapies and inhaling a variety of medicines. She takes an average of 18 pills a day, that’s 6,570 pills per year. Think about the drawer in your kitchen that gets opened and closed the most, the paint is chipped, greasy fingerprints… in our kitchen, that’s the medicine drawer. One of those medications, Trikafta, has been proven to improve lung function and significantly reduces the rate of pulmonary exacerbations, which can lead to frequent hospitalizations and accelerated lung disease. This game changing therapy is available to Mae and others with CF because of the fundraising efforts of the Cystic Fibrosis Foundation and people like YOU. It’s a huge step, but it’s not a cure- yet.

In the past you have shown up for  “Team Mamie” with force at the Great Strides event. This year we are taking a different fundraising course, literally! I will be participating in the CF Foundations Xtreme Hike where I will cover 25 miles in one day in the Berkshire Mountains of Massachusetts. By donating to my fundraising goal, you have the power to support scientific breakthroughs, and cheer on the mission of the Cystic Fibrosis Community - to provide all people with CF the opportunity to lead long, fulfilling lives.

https://fundraise.cff.org/xtremehikema/TeamMamie

Thank you for your support! Xoxo, 

Sarah, Don, and Mae