My Xtreme Hike Story
Emily Figueroa
Emily Figueroa
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m hiking to help change that reality.
Dylan was diagnosed after birth at 10 days old, we had our challenges everyday with learning a whole new routine and walking up earlier every morning to fit in all his vest therapies. Dylan had a few hospital stays during his course of living with CF some lasting 2 weeks, has been through 10 different surgeries but still continues to do well.
Recently, about 2 years ago Dylan started a new medication called Tricafta which has been known to benefit people with CF (lung function increase, decreased sickness times, weight gain, successful fertility and many other benefits) unfortunately we haven’t seen great improvement for Dylan while being on it.
Dylan has been very active the last couple years with running, different sports and being a great big brother to two little girls and little brother.
We will keep fighting everyday to find better medication and therapies til CF stands for Cure Found.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Donations are 100% tax deductible
Dylan was diagnosed after birth at 10 days old, we had our challenges everyday with learning a whole new routine and walking up earlier every morning to fit in all his vest therapies. Dylan had a few hospital stays during his course of living with CF some lasting 2 weeks, has been through 10 different surgeries but still continues to do well. Recently, about 2 years ago Dylan started a new medication called Tricafta which has been known to benefit people with CF (lung function increase, decreased sickness times, weight gain, successful fertility and many other benefits) unfortunately we haven’t seen great improvement for Dylan while being on it.
Dylan has been very active the last couple years with running, different sports and being a great big brother to two little girls and little brother.
We will keep fighting everyday to find better medication and therapies til CF stands for Cure Found.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Donations are 100% tax deductible
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