Denise Luk
Next month, Tavie will turn 7 years old and Sam will turn 2.
Hi Family and Friends,
Did you know, the median age life expectancy for cystic fibrosis patients born between 2019-2023 is 61 years?
That number is so hard to stomach, especially if you know Tavie. You must know of their endless zeal for life and their exuberant personality. They are a powerhouse of a human and one of the bravest people I know.
Every time Tavie gets sick, the chronic inflammation in their lungs gets more inflamed. Over time, this leads to scarring on the lungs and eventually lung damage. Late stage lung disease is the most common cause of death for CF patients.
Cystic fibrosis is a disease that takes constant management. From the twice-a-day daily respiratory treatments, medicines, lung function tests, blood draws, x-rays... it becomes a long list of requirements for a first grader. Tavie endures and persists through it all.
Tavie has asked, “When will I stop having CF? When there is a cure, do I still have to take all this medicine? Can I play in dirt and sand pits?”
Tavie is hopeful that when there's a cure, maybe they can get a break from CF. I'm hopeful that within Tavie's lifetime, CF patients can experience a life span of 80+ years.
Please help us give other CF kids like Tavie better health outcomes, despite the disease. DONATE to help find a cure for CF.
Thank you,
Denise
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