Hello dear friends and family,

After taking a break for (more than) a few years, I'm back at the extreme hiking! Because I've made the possibly questionable decision to hike 15 miles across Inyo National Forest, I ask that you once again support us in our quest to cure CF for our darling Abigail.

First, an update on our girl! After graduating high school last year, she's settled in to her support program in Long Beach and started classes at Long Beach City college working towards a degree in graphic design. She's had a lot of "firsts" - first time living on her own and having a roommate, working at an internship, and navigating college classes at LBCC. We couldn't be more proud! 

In terms of her health, the new medications continue to be a remarkable gift for her lung health. Her lung function remains stable and we pinch ourselves every day for the gift of lung health it has given. Unfortunately, the medications do not treat her significant GI issues, which once again this year has led to hospitalizations, many medications, and almost daily pain and discomfort.   Despite her best efforts, GI complications can strike at any time and bring her life to a halt.  It's not something that many others her age can even fathom. 

We hope every day for a cure for CF. Not only for Abby but for the 10% of the CF community who cannot take a medication like Trikafta.  We've personally seen the amazing things that science can do to better the lives of those with CF. But science requires money, and lots of it. We don't know what to expect for Abby's health in the future so we must continue to raise money for Abby and for others with CF. We will not stop until it's done.

With so much love and gratitude,
Meghann Barloewen