Run with our team to Cure Cystic Fibrosis
Robbie's Rockstars
Fundraising for 2026 Bank of America Chicago Marathon
Robbie's Rockstars
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m running to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Our Story
Robbie Kenneth Wright was diagnosed with Cystic Fibrosis at his 20 week anatomy scan back in 2024 which furthered the discovery of his Meconium Ileus. During Utero, my fiance helped the Lurie's team with a study by taking Trikafta. Throughout the following weeks, a miracle happened. Robbie's Meconium blockage slowly simmered all the way to a normal level. He was born on December 4th, 2024 and ever since has been blessing the hearts of every individual around him. He recently turned 1 year old and has been living his absolute best life. To give back and further the research for others in our family's situation, we will be fundraising and participating in the 2026 Chicago Marathon. Any share, comment, and donation helps more than you know!
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Our Story
Robbie Kenneth Wright was diagnosed with Cystic Fibrosis at his 20 week anatomy scan back in 2024 which furthered the discovery of his Meconium Ileus. During Utero, my fiance helped the Lurie's team with a study by taking Trikafta. Throughout the following weeks, a miracle happened. Robbie's Meconium blockage slowly simmered all the way to a normal level. He was born on December 4th, 2024 and ever since has been blessing the hearts of every individual around him. He recently turned 1 year old and has been living his absolute best life. To give back and further the research for others in our family's situation, we will be fundraising and participating in the 2026 Chicago Marathon. Any share, comment, and donation helps more than you know!
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