There is currently no cure for Cystic Fibrosis (CF) and those affected by the disease die far too young, with the average life expectancy around 53 years old. CF is a genetic, life-shortening disease that devastates the lungs, pancreas and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung disease and respiratory failure. 

We are running the Chicago marathon in honor of Al Jones, who passed away shy of his 50th birthday. Al was a very close family friend, our dog Pepper’s first owner, and the funniest person we have ever met. Despite his disease, Al’s humor and radiant personality always shined through, making the simplest moments unforgettable. Al was lucky to receive two lung transplants in his life, and we are so thankful for the extended time, laughter and memories we got to share. Our hope is to raise awareness for cystic fibrosis through this race and fundraising efforts, hopefully leading to the discovery of a cure. 

Every person with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life. 

We are running this race to honor Al jones, all the individuals currently fighting this battle, others who have lost the battle, and all the other friends and families affected. Our hope is to give another individual and their loved ones more time together, and hopefully a cure for this terrible disease.