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Rachel Duncker's CFF Breathe Team Story

Rachel Duncker

Fundraising for 2026 Bank of America Chicago Marathon

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Rachel Duncker

Why am I running the 2026 Chicago Marathon for the CFF?
After a lifetime of seemingly disconnected and confusing symptoms, a 2017 genetic test revealed that I had two cystic fibrosis mutations in trans -- which indicated a diagnosis of cystic fibrosis.


The months that followed were filled with uncertainty and fear. During that time, I leaned heavily on the resources and community I found through the Cystic Fibrosis Foundation (CFF).

Fortunately, further medical testing revealed that I don’t have the full clinical presentation of CF. Instead, I was diagnosed with CFTR-related disorders — a condition that, in 2017, was newly emerging in medical understanding. Even now, I continue to rely on the CFF to help me navigate this evolving spectrum of disease.


I reflect almost daily on how differently my life could look because of my genetics — and I carry deep respect for the profound impact this disease has on so many lives and families. While my genes didn’t gift me with natural endurance speed, I run to protect my lungs, to safeguard my health, and as a personal expression of gratitude for what my body is capable of.

Running for me is, in many ways, a small miracle — one I don’t take for granted, and one I want to use for the power of good. Please help me in this goal by supporting the CFF.


What is Cystic Fibrosis?
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Why support the CFF?
Cystic Fibrosis is seeing unprecedented advancements in treatment options, all of which have been made possible by funding to organizations like the CFF. Too, the CFF provides invaluable support for individual and families facing the financial, logistical, and emotional challenges or managing chronic, progressive, life-shortening illness. By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward — a cure for everyone with CF. 

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$59.50
raised of $2,200 goal
 

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.